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UK Epilepsy and Pregnancy Register 

Conducting research to make pregnancy for people with epilepsy safer

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Our Current Study

We are a group of doctors, nurses, psychologists, researchers and women with epilepsy who are interested in knowing how to make pregnancy as safe as possible for people with epilepsy and their babies. 

 

We are currently enrolling pregnant people with epilepsy to understand the health of their children and how they develop during childhood.

What is Epilepsy?

Epilepsy is a common neurological condition affecting over 600,000 people in the United Kingdom (UK).  Most people with epilepsy, including people of childbearing years, will require long-term treatment with anti-seizure medications (ASMs) to prevent seizures. With an estimated three to four pregnancies in every thousand occurring to women with active epilepsy, this means that an estimated 2,500 children are born to women with active epilepsy in the UK each year.

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Pregnant Woman

Epilepsy and Pregnancy

Although the considerations around pregnancy for a person with epilepsy are multiple, it is the potential effect of antiseizure medications on the developing baby that often raises the most concerns.  It is our aim to learn as much as we can about the health and development of children exposed to antiseizure medications so that this information can be available to people planning a pregnancy.

Our Journey
We have been investigating the health and development of children born to women with epilepsy since 1996, with the study going UK-wide in 2000.

Over the years more questions have been raised in regards to the development of the baby as well as its impact on women with epilepsy.
11,000+

Women with epilepsy and their babies have enrolled to date but we are now on a new journey. 

If you have a question please get in touch by completing the form below:

Join Our Study

We are currently enrolling pregnant people with epilepsy to understand the health of their children and how they develop during childhood.

 

Whether you are on antiseizure medications or not, you are welcome to take part. 

You can read the full information sheet by clicking HERE.

Get In Touch

Click the button below for details on how to get in touch with a

member of our team.

Funded and Supported By:
NHS Manchester University
University of Manchester
Belfast Health & Social Care Trust
Epilepsy Research Institute UK
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